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Tag Archives: syndrome
The Big Day
The big day was roughly eight days after Micah was born. In that time he had gone from being a normal infant to struggling for his life. From breathing and crying to being intubated and sedated. From struggling to get … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, heart, heart defect, heart surgery, heart syndrom, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, Norwood, Norwood surgery, stay strong, staying strong, strong, surgery, syndrome, the big day
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Numbers Games
The next several days were somewhat of a blur, in that nothing spectacular or specific occurred on any given day between day two and the day of the surgery. The wife and I fell into something of a routine. I … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, stay strong, staying strong, strong, syndrome
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Being Joshua
I know two people in my life I would qualify as Miracle Men. The first obviously is my son. The fact that he is still alive after being born with what is essentially half a heart is a miracle to … Continue reading →
Posted in Staying Strong
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Tagged being joshua, being strong, bible, book of joshua, chd, congenital defect, congenital heart defect, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, joshua, left, left heart, left heart syndrome, old testament, stay strong, staying strong, strong, syndrome
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De-Sat
I could tell you that the night went well and that the hospital was very comfortable. I would have to add modifiers to that sentence though. Namely the phrase “for a hospital”. The room we were in had a couch … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, blood oxygen saturation, chd, congenital, congenital defect, congenital heart, congenital heart defect, de-sat, defect, heart, heart defect, hlhs, hypoplastic, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, nicu, oxygen saturation, stay strong, staying strong, strong, syndrome
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Dang you Adam
We ate, we called people, I posted to Facebook. We talked some. We watched some waiting room TV. We decided I should probably go get my truck so that both our vehicles were at the hospital. My dad drove me … Continue reading →
Posted in Staying Strong
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Tagged Adam, cicu, congenital, congenital heart, congenital heart defect, Genesis, heart, heart defect, heart syndrome, hlhs, hospital, hypoplastic, hypoplastic left heart, hypoplastic left heart syndrome, ICU, intensive care unit, Job, left, left hear syndrome, left heart, neonatal ICU, nicu, syndrome, The Book of Job
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The first 5 hours
My wife had gone to sleep. I was holding my son, Micah, now a day and a half old, in my arms, while sitting in a chair in our room at the hospital, reading things on my phone. He had … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, congenital, congenital heart, defect, heart, heart condition, heart defect, hlhs, hypoplastic, hypoplastic left heart syndrome, left, left heart, left heart syndrome, prayer, stay, stay strong, strong, syndrome
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