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Tag Archives: heart syndrome
Numbers Games
The next several days were somewhat of a blur, in that nothing spectacular or specific occurred on any given day between day two and the day of the surgery. The wife and I fell into something of a routine. I … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, stay strong, staying strong, strong, syndrome
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Friends and Family
The response of our family and friends to our situation was nothing less than overwhelming. There were some phone calls with family right away and then periodically as time went on more calls would come. There were texts of support … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, family, friends, friends and family, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, iron, left heart, left heart syndrome, stay strong, staying strong, strong
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Being Joshua
I know two people in my life I would qualify as Miracle Men. The first obviously is my son. The fact that he is still alive after being born with what is essentially half a heart is a miracle to … Continue reading →
Posted in Staying Strong
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Tagged being joshua, being strong, bible, book of joshua, chd, congenital defect, congenital heart defect, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, joshua, left, left heart, left heart syndrome, old testament, stay strong, staying strong, strong, syndrome
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Hotel Hospital
The drive back to the hospital was very similar to the first drive, except there was more music involved. A song by For King And Country had just become popular and came on the radio shortly after I fired the … Continue reading →
Posted in Staying Strong
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Tagged #teammicahmason, be, be strong, chd, congenital, congenital heart, congenital heart disease, cook children, cook children's hospital, for King and country, heart, heart disease, heart syndrome, hlhs, hospital, hypoplastic, hypoplastic left heart, hypoplastic left heart syndrome, it's not over yet, left, left heart, left heart syndrome, Micah, stay, stay strong, strong
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Dang you Adam
We ate, we called people, I posted to Facebook. We talked some. We watched some waiting room TV. We decided I should probably go get my truck so that both our vehicles were at the hospital. My dad drove me … Continue reading →
Posted in Staying Strong
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Tagged Adam, cicu, congenital, congenital heart, congenital heart defect, Genesis, heart, heart defect, heart syndrome, hlhs, hospital, hypoplastic, hypoplastic left heart, hypoplastic left heart syndrome, ICU, intensive care unit, Job, left, left hear syndrome, left heart, neonatal ICU, nicu, syndrome, The Book of Job
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I Need to Sit Down
One of the individuals in the room with Micah was a well dressed man who introduced himself as Dr. Levy. He was the neonatologist, or baby doctor, for Micah. He started going into detail on what was going on with … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, cicu, congenital heart, congenital heart defect, congential, Cook Children's, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left heart syndrome, left, left heart, left heart s, nicu, stay, stay strong, staying strong, strong
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