Tag Archives: defect

The Big Day

The big day was roughly eight days after Micah was born. In that time he had gone from being a normal infant to struggling for his life. From breathing and crying to being intubated and sedated. From struggling to get … Continue reading

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Numbers Games

The next several days were somewhat of a blur, in that nothing spectacular or specific occurred on any given day between day two and the day of the surgery. The wife and I fell into something of a routine. I … Continue reading

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Friends and Family

The response of our family and friends to our situation was nothing less than overwhelming. There were some phone calls with family right away and then periodically as time went on more calls would come. There were texts of support … Continue reading

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De-Sat

I could tell you that the night went well and that the hospital was very comfortable. I would have to add modifiers to that sentence though. Namely the phrase “for a hospital”. The room we were in had a couch … Continue reading

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Which way to the Cooks?

Hypoplastic Left Heart Syndrome, or HLHS is a congenital heart condition that has no known cause. The left ventricle, which pumps blood to the body from the heart, does not develop. The condition is usually accompanied by aorta issues as … Continue reading

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The first 5 hours

My wife had gone to sleep. I was holding my son, Micah, now a day and a half old, in my arms, while sitting in a chair in our room at the hospital, reading things on my phone. He had … Continue reading

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