Tag Archives: congenital heart defect

The Big Day

The big day was roughly eight days after Micah was born. In that time he had gone from being a normal infant to struggling for his life. From breathing and crying to being intubated and sedated. From struggling to get … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | Comments Off on The Big Day

Numbers Games

The next several days were somewhat of a blur, in that nothing spectacular or specific occurred on any given day between day two and the day of the surgery. The wife and I fell into something of a routine. I … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , | Comments Off on Numbers Games

Friends and Family

The response of our family and friends to our situation was nothing less than overwhelming. There were some phone calls with family right away and then periodically as time went on more calls would come. There were texts of support … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 1 Comment

Being Joshua

I know two people in my life I would qualify as Miracle Men. The first obviously is my son. The fact that he is still alive after being born with what is essentially half a heart is a miracle to … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , , , , | Comments Off on Being Joshua

De-Sat

I could tell you that the night went well and that the hospital was very comfortable. I would have to add modifiers to that sentence though. Namely the phrase “for a hospital”. The room we were in had a couch … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , , , , | Comments Off on De-Sat

Dang you Adam

We ate, we called people, I posted to Facebook. We talked some. We watched some waiting room TV. We decided I should probably go get my truck so that both our vehicles were at the hospital. My dad drove me … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 1 Comment

I Need to Sit Down

One of the individuals in the room with Micah was a well dressed man who introduced himself as Dr. Levy. He was the neonatologist, or baby doctor, for Micah. He started going into detail on what was going on with … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , , , , , , , , | Comments Off on I Need to Sit Down

You’ve Got the Wrong Garage

I have spent a decent amount of my life in cars, trucks, and vans over the years. I like driving, not quiet as much these days as I used to, but I still do to a certain extent. I enjoy … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , | 1 Comment

Which way to the Cooks?

Hypoplastic Left Heart Syndrome, or HLHS is a congenital heart condition that has no known cause. The left ventricle, which pumps blood to the body from the heart, does not develop. The condition is usually accompanied by aorta issues as … Continue reading

Posted in Staying Strong | Tagged , , , , , , , , , , , , , , | 1 Comment